Tag Archives: cancer

TALKING TO PATIENTS ONLINE

On June 22nd, two members of the #WOMMeN project team presented at the Patients’ Clinicians Digital Interaction – Living with and beyond Breast Cancer conference held at The University of Salford.

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In this blog, Jo Taylor and Julie Stein Hodgins share their experiences.

Jo: I was invited to talk at a conference today at Salford University “Patients’ Clinicians Digital Interaction – Living With and Beyond Breast Cancer ” #beyondcancer15

My presentation considered this topic from the patient’s perspective.

It was an interesting day starting with an intro from the Chair Prof Ziv Amir who looks at committees/networks for rehab for people affected by cancer. Prof Shahid Ali talked next who is a GP and Prof of Digital Health involved in empowering patients and leading patient centred care using technology (Vitrucare) http://www.dynamichealthsystems.co.uk/vitrucare-supported-selfcare.  Very refreshing information from a professional that is showing how we can use digital health to manage our own health and show that it does save time and money from the NHS point of view.

I talked next about my web site www.abcdiagnosis and how I created it, how I interact with people using social media and living with secondary breast cancer.  I also discussed #BCCWW – Breast Cancer Chat Worldwide – and how 4 of us created this. I talked about what I was trying to do with creating a breast reconstruction app and various other connections and collaborations, as well as the mammogram project I’m involved in – #WOMMeN with Salford University.

Jo conference

Julie Stein Hodgins and Dr Leslie Robinson discussed about social media and the #WOMMeN project to create on line networks. Sarah Bodell and Angela Hook also talked about their app Occubuzz an occupational therapy app and how to use this for patients to help empower them to feel better, exercise and all around health benefits. Dr Stephen Hague talked about a new blood test they have produced to look at cancer diagnosis and genetics and how this is helping to change cancer diagnosis and treatment. Prof Diana Kloss (MBE) talked about patient confidentiality, consent and duty of care. Break out sessions discussed how we were all going to help make these things happen in the NHS.

Ther are big changes afoot with social media and getting professionals interacting with each other AND with patients.  Exciting times ahead but changes that many will not like but will have to do to keep up with how social media is working in personal lives and in the workplace.

Jo Taylor

http://www.abcdiagnosis.co.uk Contact Jo on Twitter @abcdiagnosis

Julie: Did you ever get that cool buzz when something has gone really well and you are taking something good away?

Today this happened to me. My colleague, from the University of Salford Leslie Robinson put a few slides together, in her own modest way, and asked me to deliver a presentation at a conference…Patients’ Clinicians Digital Interaction – Living with and beyond cancer. You can follow the tweets posted on #beyondcancer15

Heard a really brilliant GP from Bradford (Prof Shahid Ali) share how he is engaging with patients living with long term illnesses. They have a website/App (Vitrucare) that they can record their medical info which shows on a dashboard for the GP practise to monitor, thus any glitches and the patient can be invited for a review…30mins or 45mins long as required! They also respond via secure email to queries within 24 hours so that the patient does not ‘Google it’…i.e. look elsewhere for the information. How good is that?

I followed Jo who told us about her journey and how she created www.abcdiagnosis.co.uk. My presentation was titled, ‘Using Social Media to support patients’. Turns out most of us in the room had a ‘social media’ account. Some use the same name on social media as their HCPC registration. Nothing wrong with that, I behave professionally all the time.

Julie Some

There are many peer support groups for patient to patient and also health professional to health professional on social media platforms. Only one or two health professional to patient sites; Macmillan and our own #WoMMeN project. Some professions have already got Social Media (SoMe) guidelines. The Royal College of GPs encourage the use of SoMe in innovative ways to engage patients! Social Media includes web based platforms that are easy to share content with others. Facebook is just one example. Also think Linkedin, Google Circles, Netflix and Mashups!

There are challenges to using SoMe with patients or clients but that is where people are so we have to go there. Overarching principles for good practice in the SoMe space would be…the intent is good; the consequences have been considered; potential for harm has been mitigated and remember no site is truly private.If you wouldn’t say it, don’t write it!

I have come away feeling that the WoMMeN project definitely has a place and I believe an App is the way to go, sticking with the asymptomatic woman. But can an App allow 2 way conversation?

Julie Stein Hodgins

Contact Julie on Twitter @JulieRSH

Thanks to both Jo and Julie for presenting at conference but also for these contributions to the #WOMMeN blog.

I have never had any interaction about my own health with a health professional online or on social media.

Have you talked to your GP, consultant or another health professional online or via social media? 

How did it go? 

Do you think that this is ‘the way to go’?

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